Communication Affichée: Poster Tour 3


Le 15/10/2021 de 13:30 à 14:00


Retour Session

P083

Evaluation de la satisfaction de patients atteints de la maladie de Strümpell-Lorrain, ayant bénéficié d’une pose de pompe à BACLOFENE intrathécale. Etude observationnelle rétrospective, multicentrique.

Céline Karabulut (Caen, France), Caroline Hugeron (Garches, France), Djamel Bensmail (Garches, France), Alexis Ruet (Caen, France)

Objective : Hereditary spastic paraplegia, is an heterogenous group of genetical, neurodegenerative, rare pathologies. To date, there are only symptomatic treatments because the physiopathology is rich and complex, and because there is a huge variability of symptoms from one to another patient. Intrathecal baclofen infusion is a treatment targeting muscle spasticity. Few studies focused on gait improvement and fewer described patients' satisfaction. The aim of this study was to evaluate patients' satisfaction.

 


 


Material / Patients and Methods : Fourteen patients answered a satisfaction questionnaire during a telephone interview. The median delay between implantation and interview was 9 years (0 to 22).

Results : Most of the patients were walking at the time of the pump implantation. Most of them reported an initial improvement in walking quality and speed. Most of them were still satisfied many years later, even if they were not walking anymore. Most of them would accept this treatment again if they were asked to.

Discussion - Conclusion : The baclofen pump has no negative effect on ambulant patients, and moreover might be a satisfying care. This study underlines the importance of the first evaluation of the patient and the follow-up care.
​​​​​​​Intrathecal baclofen infusion should be considered as a second-line treatment of spasticity in hereditary spastic paraplegia even in ambulant patients.

Keywords : Hereditary spastic paraplegia; intrathecal pump; baclofen.

Disclosure of interest : Aucun