Douleurs et confort chez l'enfant en situation de handicap SOFMER / SFERHE 2

Le 16/10/2021 de 09:00 à 11:00

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Facilitateurs et barrières à l'activité physique chez les enfants avec cardiopathie congénitale

Pauline Lavenant (Brest, France), Marine Cacioppo (Brest, France), Helene Ansquer (Brest, France), Jean Guillaume Delpey (Brest, France), Sophie Guillaumont (Palavas-les-Flots, France), Laetitia Houx (Brest, France), Sylvain Brochard (Brest, France), Pascal Amedro (Montpellier, France), Christelle Pons (Brest, France)

Objectif : Participation in physical activity (PA) improves Congenital heart disease (CHD) outcomes, yet patients do not always engage in suitable sports and activities. To understand what barriers and facilitators affect PA participation, we asked a group of adolescents with CHD about their experiences and opinions on PA.

Matériel/Patients et méthodes : A qualitative study with interviews was performed. French adolescents aged 13-18 years, diagnosed with CHD, class I or II dyspnea (on the NYHA scale) were interviewed individually about their PA experiences using a semi-structured format. The interview transcript data were analyzed using a phenomenological approach; data analysis was performed independently by three different researchers, and merged at each step until saturation.

Résultats : Eleven adolescents with CHD participated. Results indicated that PA was associated with positive experiences. PA provided an important opportunity for engagement in social interaction, however integration into PA groups could be difficult, especially in school, and caused feelings like anxiety, frustration or guilt. Feelings of being physically limited were also reported. PA facilitators included familial support, however participants noted a lack of clear medical guidance to help them choose suitable PA based on their circumstances and personal preferences. They wished for the public to be better informed about CHD to reduce stigmatism.

Discussion - Conclusion : This study provides valuable information for clinicians, physical educators and policy makers to help them promote PA and support young people (and their families) in understanding their own condition, maximizing their potential and aiding them in their choice of activities.

Mots clés : congenital heart disease- physical activity

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