Douleurs et confort chez l'enfant en situation de handicap SOFMER / SFERHE 2


Le 16/10/2021 de 09:00 à 11:00


Retour Session

CO033

Qualité de vie des adultes atteints de paralysie cérébrale en Bretagne, une analyse en correspondance multiple

Philippe Gallien (Rennes, France), Aurélie Durufle (Rennes, France), David Gallien (Rennes, France), Emilie Leblong (Rennes, France), Anne-Laure Roy (Rennes, France), Benoit Nicolas (Rennes, France)

Objective : In order to improve care of adults with cerebral palsy, it is important to have a clear idea of their perception of their quality of life and a knowledge of different factors influencing it.

Material / Patients and Methods : A questionnaire was sent to users of the BreizhPC networks, including questions on body functions, participation, activities and environment. Users were also invited to complete the SF-36 (MOS 36 Short Form). A Multiple Correspondence Analysis (MCA) was then performed.
127 users, with an average age of 41 years, returned the questionnaire: 58 women and 69 men.

Results :   The scores on the various domains of the SF-36 are lower than those of the general population. The MCA analysis divides the sample into 3 clusters. The health-related quality of life of one of the clusters includes a population of 43 users with significantly lower scores in all domains of the SF-36 compared to the rest of the study population. This group is characterized by a high level of nutritional, sleep, transit and urinary disorders and pain complaints. Restriction of movement and feelings of loneliness are also more common in this group.

Discussion - Conclusion :  The adult population with cerebral palsy has a lower quality of life than the general population. Mobility disorders and limitations in getting around, low self-esteem, and difficulties with inclusion impact quality of life.
The results of our study provide a better understanding of the factors responsible for impaired quality of life in adult patients with cerebral palsy.
 

Keywords : cerebral palsy, quality of life